You Are Not Alone

When I was first told I needed a hearing aid, the last thing I wanted was for other people to know about it. I felt like I was the only person in the world with this ‘problem’ and that it was a private matter and not something I wished to discuss with other people. I now wonder if, because I discovered my deafness in a hospital setting, that’s why I felt that way about it: it was a medical diagnosis and therefore private, right?

Alone

I wonder if I’d had my hearing tested and been told I needed a hearing aid at an independent dispenser’s or an opticians with a hearing care centre, if I would have felt differently about the whole experience. (I may still have been advised to go to hospital later to discuss the prognosis but perhaps the initial experience of being told I needed a hearing aid might not have felt so ‘medicalised’.) Perhaps it would have felt more like being told I needed glasses, which was easy enough to come to terms with, as I recall.

Anyway, in the beginning, I couldn’t get used to the ‘in the ear’ hearing aid I’d been given at the hospital: it was so uncomfortable, made my ear and jaw sore and the volume was ‘deafening’ and it gave me terrible pains in my head after just a few hours of use. I consigned it to a drawer and instead embarked upon lip-reading classes. I remember that my goal was to become so proficient at lip-reading that nobody would know I had hearing loss. (I think I’d seen one too many spy movies with people looking through binoculars and reporting what was being said!)

My plan worked well for a time but then my hearing loss got a lot greater and I had to go and have another hearing test.

The student who announced the results of my hearing test did not realise the impact of what she was saying to me when she told me the hearing loss had begun in the other ear. She said it so matter of factly — but to me, I saw it as the ‘beginning of the end’. I needed hearing aids — not just one but TWO, and I was going slowly deaf in both ears. I was heart-broken.

The hospital offered me another in-the-ear aid but after the pain I’d had with the first one, I couldn’t face it. I chose to go private. When the audiologist told me I needed BTEs, again I was upset. “They’re just for really deaf people right? Surely I didn’t need those? I worried they’d be really noticeable but actually, I got the ‘open ear fit’ (the plastic tips have air holes in them) and they were light, discreet, and I honestly couldn’t always feel them. It was a revelation after having the ‘ear full’ experience.

open domes

When I did finally get these discreet hearing aids, I felt much less self-conscious about them and I started to tell a few people that I had hearing difficulties and when I did, I was amazed at how often people’s replies were that they were deaf in one ear or one of their relatives or their best friend. People at work told me about other people at work who had hearing aids and I’d never guessed (and why should I?). But it was far more common than I’d ever realised. I even showed my hearing aids to a couple of people and recommended my audiologist when it turned out they too had hearing loss. (I should have been on commission!)

I started to feel OK about having hearing aids, and the more people I met who also had hearing problems, the better I felt. Knowing other people trundle along through life with the same problems as you helps to put it all into perspective. Once the dust settles, you just ‘get on with it’, don’t you?

5 thoughts on “You Are Not Alone”

  1. I wear 2 hearing aids over the ear kind, but I hate them and when I don’t have to wear them I don’t. Can I get some info regarding these open ear fit aids. Thank You, Carol Manthorp

  2. I too had similar experience with hearing aids back in the 70s the hearing aids were clunky, uncomfortable and well no teenager wants to be seen as the only deafie in the school. I gave them up and pushed through life figuring it out. I now have a son with hearing loss and two aids, he thrives on them but as for me I have trained my eyes to do what my ears would have done and am comfortable with that. I note that my son when he has to do with out aids for a time; as in repair, he struggles and does not have the ability to “figure it out” as I do; which brings to mind the reliance aspect of hearing aids. Thoughts?

  3. Hi @Roundtuit. I don’t really know what to say in response… My hearing loss is now so great that I’m reliant upon my hearing aids for any kind of communication. I lip-read to help me pick up cues but I wouldn’t be able to rely solely on that. Fortunately for me, I have a spare pair that I can use if mine have to go for repair – but that’s only happened once in four years. Are you not tempted to try again with hearing aids now there as less clunky ones available..?

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