Cochlear Implants: The Big ‘Switch On’

After Harry had his cochlear implant operation I found myself flooded with messages of congratulations that Harry could now hear. Unfortunately, of course, this wasn’t quite the case just yet.

The operation was just the beginning and without the external hardware Harry still wasn’t able to access sound.  It took a while to explain this to people,  and on top of it was the fact we had no idea how successful the op would be until his “magic ears” were activated. Continue reading “Cochlear Implants: The Big ‘Switch On’”

After hearing loss, Katherine Bouton finds new purpose in life

 

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Katherine Bouton is the author of “Shouting Won’t Help – Why I and 50 Million Other Americans Can’t Hear You.” and “Living Better with Hearing Loss: A Guide to Health, Happiness, Love, Sex, Work, Friends… and Hearing Aids.”  She is a former editor at the New York Times where she worked on the NY Times Magazine and Book Review, and on the daily Science and Culture Desks.  Katherine is a frequent speaker to professional and hearing loss groups on hearing loss issues. Her blog  appears weekly at AARP online and also on her own site. She is a member of the Board of Trustees of the Hearing Loss Association of America.

I very much appreciate when someone responds to my blog pasts. Recently I got a very nice response from Katherine Bouton about my experiences returning to performing music again. We originally met via Facebook as readers of each other’s posts and blog articles. I greatly respect her writing and admire her work in the hearing loss community, so I decided to reach out to her. One thing led to another, which eventually led to the following interview. I know you’ll enjoy and learn from what she has to say.

Stu: Can you talk about the evolution of your own hearing loss?

Katherine: Other than age related, there is no hearing loss in my family. I lost the hearing in my left ear when I was 30. There was no indication that anything was wrong until one morning when I couldn’t hear on the telephone and later that day developed dizziness and tinnitus. An MRI and other tests all came up negative and it was diagnosed as Idiopathic sensorineural hearing loss. During my 30’s my hearing worsened and affected my right ear. By 50 I was profoundly deaf in the left ear and had a moderate hearing loss in my right ear. In 2002, I got hearing aids and they helped a lot, but my hearing loss continued to progress, often after periods of prolonged stress, and by 2008, I had lost much of the hearing in my right ear. After a series of last ditch measures, I got a cochlear implant in September of 2009.

Stu: What is the quality of your “hearing experience” now?

Katherine: It varies according to the environment and who is speaking. It’s also dependent on my emotional state. During the years immediately following the implant, I lost my job, and five members of my immediate family died – one after the other. I was the oldest child and the point person for all of them and it was stressful and debilitating. It took therapy and medication to get me back to normal (sort of). Now, as long as disasters aren’t occurring, I hear well enough. I’m a good lip reader, and I’m also pretty brazen about asking people to repeat themselves, even asking a whole dinner table full of people to stop and tell me what they’re talking about.

Stu: What hearing technology do you use?  

Katherine: I have a Phonak Naida hearing aid and an Advanced Bionics Naida cochlear implant. I use my ComPilot for listening to music and books on my smart phone and I love it. I also have a Roger Pen. I use captions on TV. I’m always delighted to find myself in a venue with a hearing loop. Continue reading “After hearing loss, Katherine Bouton finds new purpose in life”

Hear Haiti: Making a Difference

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Jason Norby is a Principal Clinical Specialist at Advanced Bionics LLC. He enjoys sarcasm and long walks in the park. His favorite dogs are puppies, and his favorite color is light tan.

Day 6

It’s the end of a long work week. I could feel it in the part of my brain that logs hours slept versus hours awake and energy expended. The summary: not enough sleep to offset the hours awake and energy consumed. It’s been a long week. But you know the feeling when something was mentally and physically taxing, yet the intrinsic reward was worth the cost? It was that kind of week and very worthwhile.

The day started with a trip to a school atop a Caribbean mountain to fit three children with hearing aids. The school sat overlooking the coast and green hills nearby. We made this trip to the school earlier this week. The drive  earlier this week up the rutted dirt road was epic with bouncing and jostling for several minutes, and the occasional sound of wheels loudly rebelling as they tried to gain traction. The small four-cylinder engine strained in rebellion to the load and incline. Today however, the dark clouds more than hinted of rain.

It wasn’t even a question, Cathy Jones, our trip director, flatly said, “We aren’t driving up the mountain because if it rains, we will be in trouble.” Continue reading “Hear Haiti: Making a Difference”

Hear Haiti: The Gift of Hearing

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Michael Lumunsad is a Strategic Marketer at Advanced Bionics

Day 5

“Oh man, we’re stuck!” I yelled as our mighty little Toyota HiAce hit a gigantic puddle on the dirt road.

The rear wheels were spinning and our vehicle was sliding around in the mud. I looked out of the side window and it looked like we landed in a lake.

“Do we have a tow winch?” I asked John our fixer/translator/security guy.

“We don’t need a winch.” he said as he looked at me with a smile.Apparently, getting stuck in mud is a common thing for these guys. Our driver started rocking the car back and forth but wasn’t getting anywhere. The 2nd van stopped and started to assess our situation. The driver of the second van got into our van through the window opening like he were one of the Duke Brothers and took over driving duties. John was piling rocks underneath our rear tires while the rest of us in the van were enjoying the impromptu carnival ride. Continue reading “Hear Haiti: The Gift of Hearing”

Hear Haiti: It Takes A Team

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Michael Lumunsad is a Strategic Marketer at Advanced Bionics LLC. 

Day 4

“I hope this van makes it up the hill,” Mohamed Khaldi excitedly said as our van went uphill on the extremely steep dirt road. Personally, I didn’t think the van would make it up with all our gear and passengers, but it proved me wrong. Who needs a 4X4 when you have a little Toyota HiAce with a faulty A/C system?

We finally arrived to the top of the hill. Wow! The school had a stunning view of the both the ocean and nearby forest covered rolling hills. The kids at this school were very lucky to be enrolled there. The school focused on encouraging, educating and empowering restaveks, orphans, and vulnerable children. Another organization was doing great things in Haiti. It was amazing. Continue reading “Hear Haiti: It Takes A Team”

Hear Haiti: a vibrant start

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Haley B. Kurzawa is a Hearing Instrument Specialist at Connect Hearing USA. She is originally from Chicago and moved to Austin, Texas last year.

Day 2.

Hearing the rooster crow was such an unusual sound for a Chicago girl. I woke up to the beautiful sunshine, feeling surprisingly rested after a long day of travel. I was very eager to start the day with my awesome team.

“Breakfast is at 8 AM. Be ready to leave for Cite Soleil after eating,” said Cathy Jones.

I prepared for a day of many detours and potentially unplanned activities. I got excited for the busy day ahead. We planned to visit a school in Cite Soleil, the skilled artisans of the Metal Works community, and the non-profit Apparent Project.

We were all excited to get to see the Port-au-Prince that’s not shown on mainstream news. We piled into two vans and headed on our way.

“The roads in Haiti have potholes just as big as Chicago,” I excitedly exclaimed. I realized driving in Haiti wasn’t like driving in the USA. There are huge pot holes, lack of asphalt, no visible lanes, no traffic lights, and lots of pedestrians. People either walk, ride motorcycles, or take “tap-tap” which are colorful trucks.  Think of vibrant Uber rides. Continue reading “Hear Haiti: a vibrant start”

Hear Haiti: Bienvenue en Haiti

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Michael Lumunsad, a Strategic Marketer who works at Advanced Bionics, will be reporting from Haiti. 

On this late Saturday evening driving to LAX, I wonder to myself, “Am I ready for this trip?”

I visualize the things that I am supposed to pack for the Hear the World volunteering mission trip to Haiti. I look at my crumpled checklist while having this bad feeling that I’ve forgotten something. I hate being unprepared. Did I miss something from the emails sent to me by Hear Haiti leader, Cathy Jones? I hope not.

My mind wanders as the freeway lights pass overhead. I’ve read so many news articles about what’s gone wrong in the country. A 7.0 magnitude earthquake. Thousands dead and millions displaced. Political instability. Zika virus. Haiti in crisis.

What can a group of American and Canadian volunteers do to help the people of Haiti? It seems too gigantic of a task. Continue reading “Hear Haiti: Bienvenue en Haiti”

Hear The World heads back to Haiti

In this Open Ears segment we’ll be following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Michael Lumunsad, a Strategic Marketer who works at Advanced Bionics, will be reporting from Haiti. 

I, probably like many of you, still remember when a 7.0 magnitude earthquake hit Haiti more than six years ago. The January 12, 2010 catastrophe killed more than two hundred thousand people and displaced millions more.  In those six years, a lot of foreign aid and relief efforts have been poured into the island to help rebuild the devastated Caribbean country, including the Hear the World Foundation, which started HEAR HAITI in 2013.

On Sunday, I’ll be joining 11 other Sonova Group employees on the fourth Hear the World volunteering trip to Leveque, Haiti. Our team will be providing patient care, hearing aid fitting, and caregiver education to many deaf children and adults living in Leveque, especially those children orphaned by the 2010 tragedy.

I will lead the documentation efforts during the trip, including sharing our experiences on social media. Others will have jobs covering administration and organization tasks, diagnostics, fitting, auditory verbal therapy, and communications.

Everyone on the team is excited to volunteer in Haiti and give back to the community in need.

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Meet some of the 2016 Hear Haiti volunteers: Continue reading “Hear The World heads back to Haiti”

Finding out our baby was Deaf

We were still getting used to the fact we had a mini human who was awake most of the night when we found out that Harry was deaf. He was just 7 weeks old when he failed the Newborn Hearing Screening.

After a series of tests and a very intensive ABR he was confirmed as profoundly deaf with no threshold of hearing. The emotions hit us like a steam train and immediately we felt worried and scared for what the future would hold for our perfect baby boy. I remember that day so clearly; when my partner Scott and I held each other close and cried ourselves to sleep. We almost had to mourn what our idea of a perfect child was, and come around to the fact that our experience as first time parents was going to be a little different than what we had expected.

We spent a good few days feeling extremely upset and worried for our little chap. Our baby was the only deaf person we had ever met. It was a completely new thing to learn about. I started to panic when I left him alone to sleep, as I thought he would wake up and be scared because he couldn’t hear us. It took me a while to realize that actually Harry had never known any different, and he shouldn’t be scared because to him the world had always been silent.

It was as quick as the day after Harry’s diagnosis when we had a phone call from our local Teacher of the Deaf. The amount of information being fed to us was quite overwhelming, but comforting knowing a support system was already in place. She came over soon after to introduce herself, and we immediately felt confident that our son wasn’t going to be forgotten about or left behind. She explained that she would help us with his development from Day 1 until he finished his education, which filled us with hope and a lot more confidence than we had initially had.

Continue reading “Finding out our baby was Deaf”

Hearing After Hearing Aids

How did you lose your hearing?

For some, that question may be considered intrusive and personal. But for most cochlear implant users, it is a great way to start a conversation with another implant user when you meet for the first time. And when the question comes from somebody who doesn’t have cochlear implants, it’s a great opportunity to show off your technology. Allow me to explain.

I grew up with normal hearing, and always enjoyed music and foreign languages, in addition to my career as an engineer and all the geeky interests that go along with it. I met my future bride while studying Japanese. We used to alternate days, taking turns speaking each other’s language.

Nine months after we were married, I was in the shower one morning, and slowly came to the realization that the water wasn’t making any noise. My analytical engineering brain kicked into action, trying to figure out what was wrong with the water. After exhausting all of the possible water problems, I realized that it was probably making its usual sounds, and that I wasn’t able to hear it.

I spent the next dozen years holding an FM microphone, which was connected to a really powerful hearing aid. This helped me read lips a little bit, but I could only use it for about an hour a day before becoming exhausted. Continue reading “Hearing After Hearing Aids”