That’s the number of people with disabilities working in the US, compared to 68.2 percent without disabilities, according to United States Department of Labor’s September 2015 Disability Employment Statistics.
The Americans with Disabilities Act (ADA) has laws that make discrimination on the basis of disability illegal, but my high school experience showed me the slippery ways people in power can bypass these laws.
In my first post-graduate job, a makeup salesperson at a major US department store, I received diversity training, which included many topics: language inclusivity; recognizing racial bias; respect of different religions. But what struck me was the topic of disability.
When I first entered the workforce, my parents encouraged me to hide my disability because I passed for able-bodied better than most people in my position. Any discrimination, they believed, would be brought by my openness, and they suspected it would be better for me to be quiet. Typically, I would have rejected this advice, telling my parents I would not be shackled by chains of ableism created by ignorant people, however, I was nervous about my post-collegiate future and felt adrift in the “real world” after almost 20 years of academia. I hated living at home and I wanted to earn money, but I was not sure if moving out and making a living would be possible if I was open about my hearing loss. Wanting to err on the side of caution, I nervously chose to go into hiding on my first day of work.
Continue reading “19 Percent”
As a social media community manager, I get to talk to a lot of people about their hearing loss. It’s been amazing to hear people’s stories – whether it’s a mom sharing an Instagram video from the first time her child’s hearing aids turned on, or a post about how new technologies are allowing a hearing aid wearer to enjoy sounds in situations they never before thought possible.
While most of my interactions have been virtual, the raw emotions are still there. I still feel a closeness with anyone whom I can answer a question for or connect them with our community of people facing similar hearing situations.
A few weeks ago, however, I had the opportunity to go offline and connect with a Phonak user in person, during filming for the new Phonak Virto V custom hearing aid testimonial video.
When I first met Josef, I was immediately warmed by his presence. His friendly demeanor and grandfatherly characteristics makes him someone you could sit down with for hours and listen to the stories he could share from his 81 years of life.
Continue reading “Listening to Josef: A hearing aid wearer we can all relate with”
If you’re active on social media, you probably have a list of hashtags you use when sharing photos about hearing loss. #HearingLoss, of course, #LifeIsOn – the official Phonak hashtag – and others such as #hardofhearing #deafkidsrock and #hearingaids. One hashtag campaign, however, recently gained international attention, with the important message: #ShowYourAids.
The #ShowYourAids social media campaign exploded this summer thanks to one young woman, Emma Rudkin, who knows from experience how tough it can be to wear hearing aids proudly.
Emma, a 19-year-old Texas native and this year’s Miss San Antonio, started the social media movement and non-profit, Aid The Silent, to raise awareness and support for the deaf community.
I talked with her about the #ShowYourAids movement and how she gained the courage to show off her Phonak hearing aids.
Continue reading “#ShowYourAids: Texan Beauty Queen Shows Us How to Live Proudly with Hearing Loss”
As a relatively new user of hearing aids (three years), and since I’m only mildly hard of hearing (without them, the spoken word is a bit blurry; with them it’s crisp), I don’t feel the need to wear my hearing aids all the time.
Oh, of course at the beginning my audiologist told me to get used to them by putting them on in the morning, not minding them all day long (pretending they’re not there and acting naturally), and taking them off in the evening. Beginners do as they’re told, don’t they? But my days are quite long (6:30 to midnight, I don’t sleep much) and my batteries ran out after 5 to 6 days.
Continue reading “The On-And-Off Relationship”
As somebody with mild/medium hearing loss, I guess wearing hearing aids are more of a choice than a necessity for me. I mean, I functioned without them for nearly 40 years. Today I wouldn’t give them up for anything in the world, of course, and I really prefer wearing them for anything resembling human interaction. But I can get by without. (An audiologist I had a chat with one day told me I’d be surprised at how people with much more hearing loss than me “get by just fine” without aids. Anyway.)
So, when do I wear them, when do I remove them? As a general rule, I wear them when I leave the house. (My cats aren’t all that talkative.) I remove them when I get home. Since I got my V90 aids though, I often forget to remove them when I get home.
I don’t wear my hearing aids to watch TV.
Continue reading “When Do You Wear or Remove Your Hearing Aids?”
As you’ll have seen from my profile/Gravatar I’m a travel writer (as well as being a deafened entrepreneur). Recently, I was in Florence, Italy and not having the best time of it because of the noise pollution and my hyperacusis. My only remaining hearing is in the mid-to high range in one ear and without my hearing aid, I can still hear very loud, very high sounds. (Like anyone with Otosclerosis, my audiogram is like an upside-down version of most people’s and my hearing deteriorated from the lower frequencies first.) This, coupled with my sensitivity to certain frequencies, meant I found the traffic noise in Florence particularly difficult to bear. I did however find some quiet attractions that I thought I’d share with you here.
Continue reading “Top Three Surprisingly Relaxing Visitor Attractions in Florence”
A complaint I’ve heard a few times lately in the hearing loss support groups I hang out in is that “full-hearing” people resist making the effort to talk to us in such a way that we can understand them. Or they do sometimes, but then forget. I feel a lot of frustration around this for some people, sometimes translated into judgements about the other “not caring” or “not paying attention” or “being offended”.
This reminds me a little, in a “through the looking-glass” way, of how we “less-hearing” people are sometimes accused of “not paying attention”, “not making an effort”, or “being distracted”.
Continue reading “How I “Get” People to Talk to me so I Can Understand Them”