Although we personally don’t refer to deafness as a disability it can be seen as one and does come with its own challenges. Being a parent of a deaf child requires a little more time, patience and understanding of what your child may be going through.
First, coming to terms with your baby being diagnosed with hearing loss can be a highly emotional and stressful time. It can bring fears, questions and a sense of loss, especially if it comes out of no where, like it did for us and Harry. When we found out about Harry’s hearing loss, the first thing we did was turn to the internet. We headed straight for forums for parents of newly diagnosed deaf children to try and understand what this meant for us as a family. To say it helped would be an understatement. I immediately felt a huge sense of hope as I connected instantly to each person’s story. It was almost like we were part of an exclusive group.
Continue reading “Support for parents of deaf children”
There are very few places in life where I actively feel my disability. With an Audeo V riding in my right ear, amplifying the world’s sounds, I can almost feel “normal” when I am around other people. Conversation has its difficulties, but usually most people are accommodating in a large crowd. Often, the participants will even say “Oh, no one can hear in a crowd like this anyway.” We all laugh and enjoy the evening, mostly filled with jokes, and the occasional drink.
One place where I consistently feel my hearing loss, however, is when my dad asks if I want to take a ride on the boat. Any time I go near water, I have to leave my hearing aid at home. Most hearing aids are not water proof, and my model is incredibly sensitive to even the slightest drop of moisture. At the beach, I can still pose as “normal” because I spend so much time body surfing over the waves until I am carried back to shore.
In the hull of a Sunfish, however, I cannot pretend my loss does not exist because I have no hearing aid to help me sail across the sea. As I put on my life vest and help my dad take the boat into the water, however, the dizziness accompanying my loss is accompanied by embarrassment. The only other children who sail with their parents are ones who do not yet know how to sail themselves. By the time they are twelve, they can man Optis and Sunfish by themselves.
Everyone else my age has been sailing on their own for years. Seeing as I am one of the few who still sails with a parent, I cannot help but feel ashamed, even when I know I should not. At this point in my life, I have opted not to sail altogether. Continue reading “Missing the Boat”