The Name I Call Myself

Picking a term to describe our hearing is fraught with implications.

The idea behind “hearing impaired” is that we are lesser human beings and must be fixed to function.

Those who suffer (dare I use “suffer”?) from mild to moderate hearing loss do not necessarily identify with the term deaf—a word that is historically loaded and also carries a distinction between capitalized and lowercase “d”. Uppercase “Deaf” reflects a community and a culture of identity, and carries pride similar to that of ethnic and religious groups. Lowercase “deaf” can reflect only severe to profound hearing loss, or hearing loss on the whole, depending who you ask.

Continue reading “The Name I Call Myself”

Hearing Loss in Percentages and Decibels

For years, I’ve been mystified when hearing people refer to their hearing loss in percentages. “I have lost 37% hearing in my left ear.”

Since I was thirteen and had my first audiogramme, that is how I’ve been thinking of hearing loss. In decibels, presented as a graph of how loud a sound needs to be so I can hear it, at various frequencies. I’ve showed my audiogramme on Open Ears already but here it is again:

Steph Audiogram

As you can see, at 500Hz I don’t hear sounds below 50dB, but at 4000Hz (higher pitch sounds) my left ear has almost “normal” hearing, as I can hear sounds as soft as 20dB. As is the case for most people, my hearing loss is not the same at all frequencies.

Continue reading “Hearing Loss in Percentages and Decibels”

Sit. Wait. Off You Go. The Training Regime of a Hearing Dog.

Assistance dogs have a reputation for being well-behaved and there’s a reason for this: they have a LOT of training!

At the UK charity Hearing Dogs for Deaf People, puppies are socialised by volunteer Puppy Socialisers who work with the pups to get them house-trained, confident in various settings, comfortable around people and other dogs and happy to walk on a lead. They also start them off with the basic commands of ‘sit’ and ‘wait’ and train them to come when called.

Continue reading “Sit. Wait. Off You Go. The Training Regime of a Hearing Dog.”

Dating with Hearing Loss: the Good, the Bad, and the Stories that Make You Say, “What?”

The audiologist will tell you many things when you get your first hearing aid. Keep it dry and don’t wear it with wet hair. Put it in a desiccating box, and change the gel packs every six weeks. Blue stickers mean the left ear, and red stickers mean the right. Come back once a year to get it re-adjusted to your latest decibel range. Cover it up to keep from getting sweaty during sports practice. Always leave your hearing aid at home when going to the beach. Clean off the wax as often as you can so the microphone does not get clogged. No one can hear anything if their hearing aid is full of wax.

Absent from this long list of warnings are instructions on how to proceed through the infamous dating game with a hearing loss.

Continue reading “Dating with Hearing Loss: the Good, the Bad, and the Stories that Make You Say, “What?””

Talk to Me: Hearing is Not Listening

I’m a talker. Have been since my first words, or so the legend goes. Even as I became part of the “hearing lost” I didn’t stop talking.

According to my audiologist when we lose hearing we have two choices, really — to recede and/or to step forward. Or in my case, to do what has always come naturally.

Being a talker with a hearing loss hasn’t always been a good thing. In fact, it’s caused me countless embarrassing exchanges more times than I have data for.But I discovered that if I talked I didn’t have to listen — or listen as much. I would simply try to outrun the speaker’s attempt at a conversation. I would try to anticipate where the conversation was going and leap into the middle of it with some confirming words or experiences of my own to try that might match the “attempted” conversation.

Continue reading “Talk to Me: Hearing is Not Listening”

Not all Hearing Dogs are Labradors

I’ve wanted a Hearing Dog so much for so long — but I thought it might never happen. When life throws you curveball after curveball, it’s easy to become a pessimist. But on a sunny day in January 2015, I found myself on my way to the Hearing Dogs for Deaf People’s Beatrice Wright Centre (named after Lady Beatrice Wright, co-founder of the UK charity) in the rural location of Bierley in East Yorkshire.

Hearing Dogs are trained to alert deaf people to specific household sounds and danger signals in the home and when out and about. Since dramatically losing most of my hearing, I became convinced that a Hearing Dog would help give me confidence and independence I had lost, and so I embarked on the application process.

Continue reading “Not all Hearing Dogs are Labradors”

How Hearing Loss Influenced My Taste in Fashion

Everybody who has met me knows that I have a very strong, yet unpredictable sense of style.

One day, I will wear a blue high-low dress that floats over the floor as I walk. My eyes are blue and silver, and my legs completely black from the illusion created by leggings and boots. The next, I might step out in hot pink skinny jeans and a Gap kids’ shirt with a starry-eyed cat, paired with black thigh-high boots. Cat wings will grace my eyes, and sometimes, I’ll wear heart-shaped glasses if I feel really psychedelic. In college, I actually received a prize for having the most colorful fashion in the entire school. Frequently, I am the fashion consult of my family and friends. The outlandish, erratic nature of my fashion is, ironically, a signature style.

My freedom to dress so outlandishly was acquired by the alienation that came from my hearing loss and chronic ear infections. Other middle school students frequently called me a “retard”, and harassed me in every class because of my hearing loss.

Continue reading “How Hearing Loss Influenced My Taste in Fashion”

What Not Being Able to Use the Phone Has Cost Me

Christmas is a time for remembering old friends, but sometimes it can also bring back some sad or unpleasant memories. Seeing a former friend’s name in my address book reminded me of something that happened a few years ago…

After my sudden deafness in my ‘good ear’ in 2011, I could no longer use our telephone or my mobile for calls. Some friends were accommodating, converting our communication to text, email or social media but, sadly, others weren’t so accommodating.

English bulldogs dressed up as santa and rudolph

Continue reading “What Not Being Able to Use the Phone Has Cost Me”

As One Song Ends, Another Finds Its Voice

Stu and his guitar.

In late summer of 2010, my wife was dying.

Managing the late stages of a rare and fatal cancer was challenging enough, but our communication was deteriorating as well. Her voice had weakened to a whisper and my poor hearing and inadequate hearing aid could not compensate. We sat quietly in her final weeks making contact with our eyes and hands when words failed us both.

And then she was gone.

Continue reading “As One Song Ends, Another Finds Its Voice”

Parker: The Boy Who Taught Me About Shame

There are very few things about which I feel shame. Shame: “a painful feeling of humiliation or distress caused by the consciousness of wrong and foolish behavior”. Note this: the consciousness of wrong or foolish behavior.

However, we are often made to feel shame over the silliest things. Some people are made to feel ashamed because their clothes are “so last season”, or they are unable to have a certain amount of income. Many of us who read and write for Open Ears have had at least one experience with shame over hearing loss. But where is the “wrong and foolish behavior” in having ears that do not function as we believe they should? This ill-placed experience of shame causes us to forget what is truly wrong and foolish behavior, which we should justly feel ashamed of.

Sad boy alone in a bare room

How do I know what it’s like to carry a wrong idea of shame? At age 16, I learned what shame really was by becoming a bully.

Continue reading “Parker: The Boy Who Taught Me About Shame”