Coming Out of My Hearing Loss Closet

I grew up the child of someone with hearing loss. I knew it in a peripheral way — my father wore hearing aids, but they were never seen — always hidden by sideburns grown long for that purpose. He never discussed his hearing loss and went out of his way to hide it. I remember social gatherings where he would disappear only to be found sitting at a table in the corner alone. I always wondered why, but now I know, because I have hearing loss too.

As a child, my hearing was fine, but when I first had trouble hearing in my mid-twenties at business school, I hid it, following my father’s example. I even refused to wear my first pair of hearing aids, afraid someone might see them. I felt embarrassed. I am not sure why. Was it a learned response from watching my father, or was it something larger — a stigma associated with hearing loss that I wanted to avoid? In any event, my mother’s reaction was not encouraging. “Do you really need to wear them?” she asked me.

Eventually, the answer became yes, I really did need to wear them, but I still avoided them as much as possible. I would sneak my hearing aids in on my way to work, wear them all day hidden behind my long hair, and whip them out as soon as possible at the end of the workday. I hated my hearing aids and only wore them when I absolutely needed to, and never socially or with my family. Continue reading “Coming Out of My Hearing Loss Closet”

#HearingLossHour: A Silent Revolution?

When I suffered sudden sensorineural hearing loss, it was a very isolating experience. Before I discovered Phonak BiCROS aids, I was pretty much unable to converse with people other than by using a Sonido device. The Sonido is a handheld device the size of a cordless phone, which has a microphone and amplifier and a socket that I plugged a ‘one good ear bud‘ in. I was mortified at having to use it outside of the house but it was the only way I could go back to work and do my job as a trainer.

When I first became deafened, however, I suffered terrible vertigo and sickness and I had several days where I couldn’t move my head at all. The only thing I managed to focus on was my mobile phone, and so I found myself turning to social media to combat the isolation I felt.

Through using Twitter, I started to make new friends and, with one of those friends, I started something on Twitter known as ‘#Yorkshirehour‘. Since March 2012, every Wednesday between 8 and 9pm, we’ve facilitated a Twitter hour to help Yorkshire people promote their businesses, events and charities and I’ve made more and more friends — many of whom I’ve now met in real life.

The success of #Yorkshirehour was overwhelming and within a few weeks, the topic was regularly trending in the top ten most talked about topics in the UK each Wednesday evening. Since then, the @Yorkshire_hour account has gained over 24,600 followers and the format has been replicated all over the UK. Continue reading “#HearingLossHour: A Silent Revolution?”

Does a Lack of Loops Drive You Loopy?

Hands up if your hearing aid has a T-setting. Hands up if you regularly encounter loops that are not working or not switched on? Frustrating, isn’t it?

I’m new to being a loop user. I never felt the need to use them before but as my hearing is deteriorating, my audiologist recently recommended I start using loops and she activated the T-setting on my hearing aid.

Off I went into the world, which seemed pregnant with possibilities of smoother encounters at customer service points and checkouts and an ability to access conferences and theatre performances.

Oh, how quickly I came crashing back down to earth from the reality of how poorly serviced we are in terms of loop provision here in England!

Here is an account of my first two weeks as a loop ‘user’ (and I use the term loosely because I never got to ‘use’ a single loop).

Continue reading “Does a Lack of Loops Drive You Loopy?”

Let it Be: A Beatlemaniac’s Beacon Through Hearing Loss

This May marks 45 years since Let it Be, the Beatles’ last album, was released. My parents, who were 11 and 21 at the time, remember the album as the tragic marker of the Beatles’ downfall. Dad lost his taste for the Beatles after they shed their mop tops, but he was still saddened to see them break up. To this day, Mom cannot watch the film version of Let it Be without crying because the fights between John and Paul, along with George and Ringo’s frustration, were nothing short of painful.

As a fan known by her community as a Beatlemaniac, I view Let it Be as the heart-rendering last words of my favorite band. As a hard of hearing person, however, I cannot see Let it Be as anything other than the safety blanket that let me release my feelings about my hearing loss. Continue reading “Let it Be: A Beatlemaniac’s Beacon Through Hearing Loss”

Faking It

In one of his recent articles here, Stu mentions bluffing. If you are, like us, of the “hearing lost” (Stu again, I love this expression), then this probably strikes a chord.

How much do you fake it? How much do you pretend you’ve understood when you haven’t?

For me: a lot. Much less now that I have hearing aids. But before…

I understand now. I was making colossal efforts to compensate for my hearing loss. And at some point, the effort is not just worth it anymore, and it’s easier to pretend. Like Christina pretended to hear Santa Claus because it was less painful to bluff than to stick out, once again, as different.

In a way, I tell myself that my years of faking it have made me super sensitive to context, and pretty good at filling in the gaps. My brain is always running around to find missing pieces, definitely a useful skill when problem-solving. But let’s not kid ourselves, I missed out on a lot, and also did myself a disservice socially at times, by “not getting it”. Continue reading “Faking It”

Subtitles: On or Off in a Shared Home?

If you live with someone who doesn’t have hearing loss, is there a tension around having the subtitles on when you watch television together?

When my husband went away on a trip last year and I was home alone, at the first opportunity I got, I switched the subtitles to ‘on’ and had them on all the time. ‘On’ was not their normal default setting in our house at that time, you see. Normally, I would only ask to have them on when I was really struggling to follow the plot of a show.

Of subtitles, someone once said to me, “I don’t know how you can read the text and watch what’s going on at the same time.” When she said this, I was tempted to say, “I don’t know how you can’t.” Continue reading “Subtitles: On or Off in a Shared Home?”

Breaking the Surgery Mindset

For the past ten years, I believed I knew everything there was to know about making difficult decisions. In my mind’s eye, the hardest decision I had ever made was to stop wearing bilateral hearing aids and opt for years of hearing restoration surgery.

After the traumatic experience of being intubated awake, returning to the operating room by choice felt nothing short of insane. Yet, I knew enough to understand that I would not be able to have the life I desired without repairing my eardrums. I was already ambitious as a pre-teen, with a list of lofty dreams including attending a top college, reaching the world with music and writing, learning at least five languages, and seeing as many countries as I possibly could.

All of these goals felt heavily dependent on hearing for their execution. Though I feared surgery more than anything else on the planet, I made the decision to go for it in hopes of having the hearing necessary to make my dreams come true. Continue reading “Breaking the Surgery Mindset”

More Phone Etiquette for the Hearing Challenged and Those that Call Them

Everyone with a hearing challenge has a phone story.

I knew from my very first hearing aid that the phone was going to be a problem. The technology at the time included a phone program that worked if I was in the right location with my head cocked at a 27 degree angle facing east during the new moon. Static was a persistent by-product.

Today, I am one of the growing numbers of people using a cell phone almost exclusively. I also have an adapted and amplified phone with a visual display connected to the Wi-Fi in my home that I have yet to customize to my preferences as I am skeptical about the Wi-Fi reception for reasons I’ll outline later. Continue reading “More Phone Etiquette for the Hearing Challenged and Those that Call Them”

“Right Hear, Right Now”: Hearing Loss Awareness as Works of Art

The statistics are well-known. More than 1.1 billion people around the world are affected by hearing loss, but only one in five people who would benefit from a hearing aid actually uses one. Ask anyone and they will probably either know someone with hearing loss, or have someone they know who could probably benefit from a hearing aid. But why is it that while people often recognize symptoms of hearing loss they rarely do anything about it? Continue reading ““Right Hear, Right Now”: Hearing Loss Awareness as Works of Art”

The On-And-Off Relationship

As a relatively new user of hearing aids (three years), and since I’m only mildly hard of hearing (without them, the spoken word is a bit blurry; with them it’s crisp), I don’t feel the need to wear my hearing aids all the time.

Oh, of course at the beginning my audiologist told me to get used to them by putting them on in the morning, not minding them all day long (pretending they’re not there and acting naturally), and taking them off in the evening. Beginners do as they’re told, don’t they? But my days are quite long (6:30 to midnight, I don’t sleep much) and my batteries ran out after 5 to 6 days.

Continue reading “The On-And-Off Relationship”