Hear Haiti: Haiti, the Unbelievable

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Jenn Brinn is a digital marketer who works at Sonova e-Hearing Care in Nashville, Tennessee. She is passionate about technology, travel, coffee, documentaries, and her family.

Day 8

Over the years, The Hear the World Foundation has been sending volunteers on dozens of service trips with the mission of providing better access to hearing healthcare to those in need around the globe. Historically, these volunteers have been Sonova employees with a clinical audiology background; after all, the majority of the work on these trips is to fit and recheck hearing aids. Since starting work at Sonova a year-and-a-half ago, I would get the emails asking for volunteers for this or that service trip, but none of the qualification criteria matched my skill set.

In May, I finally got the email I’d been waiting for…the trip to Haiti in October of 2015 needed a communications volunteer. Seeing as my background and interests are in digital marketing and communications, this opportunity was a perfect fit. I applied, and in early July was notified that I was selected to be the first volunteer with a dedicated role of being the trip historian/documentarian. Since I am not an audiologist, I immediately began brainstorming how I could leverage my hobbies (and day job)–which consists of photography, videography, social media, and content creation–to best capture the spirit of the people we were setting out to serve. The answer, I would come to find out, was about to reveal itself to me in a way I wouldn’t have believed if I didn’t experience it for myself.

LuggageIt began when our plane touched down in Port Au Price around 3 p.m. Sunday. The airport was small and crowded. The baggage claim carousel was chaos–people pulling bags off as quickly as they were released, elbowing one another out of the way, knocking into each other with luggage carts. Once the area cleared, my bag was nowhere to be found. After searching and waiting for over an hour, I surrendered to the fact that my luggage was either taken by mistake or stolen. Not wanting to hold up the team any longer, we loaded up the bus and headed to New Life Children’s Home where we would be staying for the week. I thought, surely in a few hours someone will call saying they had taken my bag by mistake and it would be returned to me. But by 9 p.m., my phone hadn’t rung. It was time to start asking my travel mates to borrow pajamas, a toothbrush, and something to sleep in. In the poorest country in the Americas, the only items I had to my name were the clothes on my back and my camera and computer, which I traveled with in my carry-on backpack. Talk about being out of your comfort zone!

Continue reading “Hear Haiti: Haiti, the Unbelievable”

Eloise Garland “takes over” Phonak’s Instagram

At Phonak, we are committed to fighting the stigma attached to hearing loss, to tearing down barriers for the hearing-impaired and to finding new and innovative ways to help everyone reconnect to the beauty of sound. We also know that individuals play a strong role in breaking down those stigmas.

To celebrate those in our community who are being open and proud of their hearing situations, we’ve teamed up with some of our favorite Instagrammers, and asked them to capture their personality and signature looks, and show us what it really means to live with hearing loss.

Last week, we featured 20-year-old Eloise Garland, a music student from the UK.

She is an inspiration to many people – especially teens – with hearing loss, both in what she’s accomplished in her personal life, as well as the unique way she shows of her hearing aids with cool stickers and decorations that she sells on her Etsy.com store, Rainbow Tubes.

You can share your story with us too using the hashtag #lifeison on Instagram! Together we can break down the stigmas of hearing loss.

Follow Phonak on Instagram.

“Can you really work as a hearing care professional with your bad hearing?”

This is the question that some friends of mine have asked me when we were talking about my job. De facto, this is not a completely fallacious train of thought. There was a time in the past when I was wondering the same: particularly around my A levels, which, as they say, open all the doors to working life. “Really? For everybody?” were my thoughts.

At that time, I was attending a regular school and could perfectly manage my congenitally profound hearing loss in both ears by simply sitting in the first or second row in the classroom. Moreover, I always had terrific, attentive teachers and friends around me for support if necessary. Things then became more challenging when I had to think about my upcoming working life.

Suddenly, I became aware of my handicap and as a consequence, I was wondering which professions I would be able to take up with my hearing impairment.

I want to give you an idea of what my hearing loss means. With hearing aids, I perceive sounds as you would perceive a pixelated and blurred picture, in which you can recognise the shape and the gender of the person but not the details like the pattern of the pullover, for example. Enough to be able to cope with it. Continue reading ““Can you really work as a hearing care professional with your bad hearing?””

Missing the Boat

There are very few places in life where I actively feel my disability. With an Audeo V riding in my right ear, amplifying the world’s sounds, I can almost feel “normal” when I am around other people. Conversation has its difficulties, but usually most people are accommodating in a large crowd. Often, the participants will even say “Oh, no one can hear in a crowd like this anyway.” We all laugh and enjoy the evening, mostly filled with jokes, and the occasional drink.

One place where I consistently feel my hearing loss, however, is when my dad asks if I want to take a ride on the boat. Any time I go near water, I have to leave my hearing aid at home. Most hearing aids are not water proof, and my model is incredibly sensitive to even the slightest drop of moisture. At the beach, I can still pose as “normal” because I spend so much time body surfing over the waves until I am carried back to shore.

In the hull of a Sunfish, however, I cannot pretend my loss does not exist because I have no hearing aid to help me sail across the sea. As I put on my life vest and help my dad take the boat into the water, however, the dizziness accompanying my loss is accompanied by embarrassment. The only other children who sail with their parents are ones who do not yet know how to sail themselves. By the time they are twelve, they can man Optis and Sunfish by themselves.

Everyone else my age has been sailing on their own for years. Seeing as I am one of the few who still sails with a parent, I cannot help but feel ashamed, even when I know I should not. At this point in my life, I have opted not to sail altogether. Continue reading “Missing the Boat”

Listening to Josef: A hearing aid wearer we can all relate with

As a social media community manager, I get to talk to a lot of people about their hearing loss. It’s been amazing to hear people’s stories – whether it’s a mom sharing an Instagram video from the first time her child’s hearing aids turned on, or a post about how new technologies are allowing a hearing aid wearer to enjoy sounds in situations they never before thought possible.

While most of my interactions have been virtual, the raw emotions are still there. I still feel a closeness with anyone whom I can answer a question for or connect them with our community of people facing similar hearing situations.

A few weeks ago, however, I had the opportunity to go offline and connect with a Phonak user in person, during filming for the new Phonak Virto V custom hearing aid testimonial video.

When I first met Josef, I was immediately warmed by his presence. His friendly demeanor and grandfatherly characteristics makes him someone you could sit down with for hours and listen to the stories he could share from his 81 years of life.

Continue reading “Listening to Josef: A hearing aid wearer we can all relate with”

Teen aims to make Californian city more hearing loss-friendly

Imagine a world where every newly constructed building would include accommodations for those with hearing loss, including acoustically-friendly designs, captioning and the latest hearing assistive technology.

While it seems like a lofty goal, one 16-year-old from California is encouraging his community to do just that.

Johnny Butchko knows too well what it’s like to not be able to understand people in public spaces.

“Every day that I am in school I have difficulty hearing in the halls, the cafeteria and the courtyards, because there is a lot of background noise,” he said.

Johnny was born severe-to-profoundly deaf. Equipped with Phonak Naida Q 50 UP hearing aids, he uses an FM system and captioning in the classroom, and a caption phone at home, but in public spaces, the feeling of being lost in translation is all too common.

So, he decided to do something about it.

Continue reading “Teen aims to make Californian city more hearing loss-friendly”

#ShowYourAids: Texan Beauty Queen Shows Us How to Live Proudly with Hearing Loss

If you’re active on social media, you probably have a list of hashtags you use when sharing photos about hearing loss. #HearingLoss, of course, #LifeIsOn – the official Phonak hashtag – and others such as #hardofhearing #deafkidsrock and #hearingaids. One hashtag campaign, however, recently gained international attention, with the important message: #ShowYourAids.

The #ShowYourAids social media campaign exploded this summer thanks to one young woman, Emma Rudkin, who knows from experience how tough it can be to wear hearing aids proudly.

Emma, a 19-year-old Texas native and this year’s Miss San Antonio, started the social media movement and non-profit, Aid The Silent, to raise awareness and support for the deaf community.

I talked with her about the #ShowYourAids movement and how she gained the courage to show off her Phonak hearing aids.

11375819_1750491521883670_2081477159_n(1)        3bellamich Continue reading “#ShowYourAids: Texan Beauty Queen Shows Us How to Live Proudly with Hearing Loss”

Back To School: Real Advice from Parents with Hard-of-Hearing Kids

Heading back to school each fall always brought mixed emotions. Sure, it’s exciting preparing for another year, getting excited to see your friends again and get into a routine, but it could also bring anxiety about the unknown. Will I like my teachers? Will I have friends in my class? Am I going to be able to understand all the formulas in math class?

I assume for parents, especially parents of children with hearing loss, the first few weeks of school can be just as stressful.  How do you ensure you’re giving your child the support and tools they need to succeed in the classroom?

To get some advice, I turned to social media to ask parents to share their best back-to-school tips.

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Never Mind, It’s Not Important

You’ve read articles about this, right? How we the hearing less don’t appreciate being told “never mind” or “it’s not important” when we’re asking for something we didn’t understand to be repeated.

Since I started wearing hearing aids, I’ve had a few years to reflect on the impact growing up hearing less, first undiagnosed, then underestimated. When I see what a hard time adults sometimes have adjusting their communication habits to my ears, and that I still sometimes fake it despite my fancy cutting-edge hearing aids, I can only imagine what an impact this had on my relationships and ability to socialise as a child.

Some years ago I met up with a few girls I was in kindergarten with. It was really fun to meet them as adults, and we got on great, although we weren’t all exactly friends when we were in school together. I saw them as the “popular” girls and they didn’t seem to be very interested in me. As I was mentioning that, one of them remarked that it wasn’t they didn’t like me, but that I didn’t really speak to them or answer when they spoke to me. Continue reading “Never Mind, It’s Not Important”

I Never Lost My Hearing

Though I find myself favouring the expression “hearing loss” to talk about “hearing that’s not ‘normal'”, it always feels wrong for me.

You see, I haven’t lost my hearing: I just never had it. Well, the part that’s missing. Because there is a sizeable chunk that is there. Give me 60 dB in any frequency (down to 25 in my better ones) and I’ll happily hear.

As far as I can tell, I was born with “hearing like that”. I share my cookie-bite audiogramme with my brother and father, a typical situation of hereditary congenital “not hearing well-ness”.

Saying “hearing loss” makes it sound like at some point I lost my hearing. Like I have a “before” and an “after”, or that my hearing is deteriorating. That I have an awareness of what life with “more hearing” is like. But my “loss-less” story is very different from the stories of loss that others like Stu, Christina, Howard or Angie have been through. Continue reading “I Never Lost My Hearing”