Listening to Josef: A hearing aid wearer we can all relate with

As a social media community manager, I get to talk to a lot of people about their hearing loss. It’s been amazing to hear people’s stories – whether it’s a mom sharing an Instagram video from the first time her child’s hearing aids turned on, or a post about how new technologies are allowing a hearing aid wearer to enjoy sounds in situations they never before thought possible.

While most of my interactions have been virtual, the raw emotions are still there. I still feel a closeness with anyone whom I can answer a question for or connect them with our community of people facing similar hearing situations.

A few weeks ago, however, I had the opportunity to go offline and connect with a Phonak user in person, during filming for the new Phonak Virto V custom hearing aid testimonial video.

When I first met Josef, I was immediately warmed by his presence. His friendly demeanor and grandfatherly characteristics makes him someone you could sit down with for hours and listen to the stories he could share from his 81 years of life.

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#ShowYourAids: Texan Beauty Queen Shows Us How to Live Proudly with Hearing Loss

If you’re active on social media, you probably have a list of hashtags you use when sharing photos about hearing loss. #HearingLoss, of course, #LifeIsOn – the official Phonak hashtag – and others such as #hardofhearing #deafkidsrock and #hearingaids. One hashtag campaign, however, recently gained international attention, with the important message: #ShowYourAids.

The #ShowYourAids social media campaign exploded this summer thanks to one young woman, Emma Rudkin, who knows from experience how tough it can be to wear hearing aids proudly.

Emma, a 19-year-old Texas native and this year’s Miss San Antonio, started the social media movement and non-profit, Aid The Silent, to raise awareness and support for the deaf community.

I talked with her about the #ShowYourAids movement and how she gained the courage to show off her Phonak hearing aids.

11375819_1750491521883670_2081477159_n(1)        3bellamich Continue reading “#ShowYourAids: Texan Beauty Queen Shows Us How to Live Proudly with Hearing Loss”

The Day I Heard Santa Claus

It was 6 A.M. on Christmas morning. My brother, Doug, and I had woken up much earlier, but our parents said, “Don’t wake us up before six.” Each minute seemed to drag before, finally, we could spring into our parents’ bed shouting, “WAKE UP! IT’S CHRISTMAS!”

Both of them rolled under the covers, in hopes of grabbing a few more seconds of sleep. My dad cried, “Spirit! Haunt me no more!”, before letting my brother and me climb into bed. It was very easy to fit two parents, a four-year-old boy, a six-year-old girl, and a two-year-old cat under the same sheets. We were all warm, snug, and full of Christmas cheer. Inevitably, my Dad would always ask the same question, and it would always break my heart.

“Did you hear Santa last night?” My dad asked.

“Sure did!” Doug replied.

“Oh…yeah…me too…” I stammered, faking a smile.

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Why I Set Up Deaf Blog The Limping Chicken

I set up The Limping Chicken, a deaf news website and blog, in February 2012. My life hasn’t been the same since!

From that day onwards, we have published at least one article every weekday, featuring over 120 deaf writers, and gaining over 2 million views.

thelimpingchicken

In December, we broke the worldwide story about the fake interpreter at the Nelson Mandela memorial service, which by far was our biggest story to date – the site crashed for a while (but luckily we managed to fix it!).

We have a number of supporters, which enables the site to exist, and we are honoured to count Phonak among them.

Although it keeps me very busy, writing, editing, moderating comments and finding new contributors, it’s the best job I’ve ever had!

So why did I set it up?

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Your Audiologist — A Life-Long Relationship

It was another “normal day” at the office. My schedule was full of hearing evaluations, hearing aid fittings, and follow-up appointments. No boring routine, as each client was unique in their history and needs, as well as their expectations. As any doctor does, I had developed a mental check list I would follow when meeting a new patient. Medical history, listening needs, diagnostic testing, explanation of evaluation results and counseling. The process had never failed me.

I met Jane in the waiting room, brought her back to the testing area, and introduced myself. After completing the diagnostic testing it was time to start the counseling portion. Jane was not unlike other individuals I had worked with, however she was unique and to this day has made a lasting impression on my professional career.

Audiologist for life

Jane was young, in her early thirties at the time of her evaluation, and had experienced a rapid decrease in hearing in her right ear. Over a very short period of time, Jane had lost approximately 75% of her hearing in that ear, while her left ear remained unaffected. She worked in a multi-physician office that required her to perform quickly and efficiently, two qualities which were starting to be affected by her hearing loss. She described anxiety, stress, exhaustion, and an overall feeling of desperation for any intervention that may help her “get her hearing back”.

As her audiologist I could see the physical evidence that her hearing evaluation revealed. However, I knew that if I simply started to read the results back to her, I would only be adding to the sense of helplessness she was describing. So I did the next best think I could think of. I pulled my chair up next to Jane and her husband, left her results on the table, and told her that she already knew what the results were. Her hearing was indeed measurably worse in her right ear in comparison to her left ear. She had been working overtime trying to compensate for the difference. I told her that she had every reason to be upset, to feel stress and anxiety while trying to perform her job. Most importantly, I told her that she was exhausted at the end of the day because she was doing the job of two ears with one. She was working to compensate and function as if she still had normal hearing in both ears. Her brain was literally exhausted. Everything she described, every function and emotion, was valid. She was exhausted.

It was only a matter of seconds before she started to cry in the middle of the office. For a hearing healthcare professional, crying is not out of the norm to experience on a daily basis. Jane’s crying surprised me, however, and I think it surprised her husband as well. When I was finally able to ask her if she was okay, she looked at me and simply said, “thank you”. I asked her why she was thanking me, as I must admit you do not always receive a “thank you” when you explain results to clients. Her explanation was easy: I had been the only person who had taken the time to validate what she was experiencing on a daily basis.

The rest of the appointment was filled with discussions of Jane’s unique hearing loss, her work environment, the amplification options available, and the expectations of what may or may not be possible. Regardless of the outcome of Jane’s appointment that day, she left my office a vastly different woman than when she first arrived. She was not the only person who had been transformed in the 90 minutes that had elapsed, however. She also made a lasting impression on me. To this day I remember Jane and I can feel the emotions of that appointment rush back over me. I only hope that in the 5, 10, or 20 years even, Jane remembers the same thing. These relationships are the ones that last forever.

Relationship? Is that the right word to describe the interaction between a patient/client and a doctor? If you’re talking about your general healthcare provider perhaps it is, but your dentist? Maybe not. Your audiologist? Absolutely! The definition of relationship says it all: “The way in which two or more people or things are connected”. A hearing loss impacts the rest of your life, as does your decision to (or not to) wear hearing aids. The routine testing, maintenance of hearing aids, fine tuning and programming, repairs,etc., these are all actions taken between you and your audiologist. When something is not functioning appropriately or broken, you depend on your audiologist to know the answer and get you communicating again! Your audiologist, when you find one that you feel comfortable and happy with, will always be a part of your life.

It is our human nature that causes us to “judge” someone when we meet them — do we like their personality, are we “on the same page”, will we work well together? These are all questions that you should ask yourself when you meet your audiologist, because it is important to remember that if you are starting this relationship out on the wrong foot, then it cannot grow and evolve like it needs to. Not only do you make an impact on the audiologist, but we can only hope to make an impact on your life — your communication. We do all that we can to provide you with the tools you need to have continued success and a life full of unlimited communication and interaction with the world around you.

Katherine’s Hearing Story

The beginning of my work as editor for this blog also included a crash course in familiarising myself with the “hearing-impaired” community. As a reasonably recent hearing aid user with mild to moderate loss, I had pretty much dealt with my hearing all by myself until then.

I met Katherine Barnes in a Facebook support group for people suffering from tinnitus and hearing loss. She’s currently finishing her first year of business management in Georgia (USA). Here’s her story:

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Becoming Not Quite Like Beethoven

As I was invited to contribute a series of posts to this blog, I thought first off I would like to tell you a little bit about who I am.

graz - graffiti :: beethoven
photo credit: southtyrolean

When Ludwig van Beethoven lost his hearing at age 30, he was totally and utterly devastated. I learned about this at roughly the same age and was taken aback by the commonalities. By coincidence I had found Beethoven’s letter to his brothers (which has come to be known as the Heiligenstadt Testament) on the internet: Continue reading “Becoming Not Quite Like Beethoven”

But You Look So Normal

It’s easy to pretend that I am just like everybody else until someone blurts out a subtle, but painful statement.

“But you look so normal!”

Christina Lisk

Those words were uttered to me in the library after another student lost her temper because I could not hear her whispers. My response to her irritation was to pull out my hearing aid, wave it in her face, and say, “I’m sorry, I’m hard of hearing. Could you repeat that?”

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