My favorite YouTubers (who caption!)

Captioning on YouTube has been a hot topic in the deaf/Hard of Hearing world lately, especially among teenagers.

YouTuber Rikki Poynter – Pikachu lover and advocate for closed captioning, who’s also deaf – has sort of led the charge for getting all YouTube videos captioned. She explains in her video why captioning is important for Deaf/HOH people, as well as those who don’t speak the language that the video is filmed  in. She also posts a whole load about deaf related topics.

Captions on YouTube has been such an important topic lately, mostly because they are so bad. In 2009, YouTube released their automatic captioning feature for videos using voice recognition algorithm, but the text is often inaccurate. While YouTube does let users upload their own captions, it can be time consuming, and most users don’t do it.

However, with encouragement from the Deaf/Hard of Hearing community, and people like Rikki, there are some YouTubers who are leading this change.

Here’s a list of some YouTubers I’ve found who caption their videos: Continue reading “My favorite YouTubers (who caption!)”

Dating with hearing loss: Date spots, cuddling and lip reading in the dark

I got inspiration for this blog post from Rikki Poynter’s video, ‘Dating While Deaf.’ For those who don’t know who Rikki is, she’s a deaf YouTuber, a massive Pikachu fan, an advocate for closed captioning, and just an ordinary teenager like me!

As a person with hearing loss, there’s two sides to dating… being with a normal hearing person or with a deaf partner.

Personally, I’ve been in a deaf-hearing relationship before, and it didn’t work out. I wouldn’t say it was my deafness that ended it, as I am very capable in life with communicating, but I’d just like to point out that he could have been more understanding with my needs. (Like he didn’t get my attention when talking to me, or couldn’t be bothered to repeat what he said… so the whole thing didn’t work anyway.)

After this experience, I had doubts about whether I was ever going to be in a relationship again. I felt like all the boys my age were very judgmental and immature. At the time I also had this misconception that all deaf boys were signers, which worried me because I’ve never really interacted with deaf people before, so I felt that I wasn’t going to be able to communicate with them.

A few years ago, however, my views on dating changed when I went to a deaf young leader’s course, and met my boyfriend! Continue reading “Dating with hearing loss: Date spots, cuddling and lip reading in the dark”

The Minefield of Hearing-Related Terminology

“Deaf,” “deaf,” “hard of hearing,” “hearing impaired”…

There are many words that describe someone with hearing loss. Some of them are used to describe how much you can hear, others elicit positive feelings, and other more negative. Other terms are viewed as politically correct, while unfortunately in some places it’s still common to use words like “deaf and dumb.”

Thankfully, we’ve come a long way from terms that belittle people with hearing loss, but there are still situations that we run into that make us think, wow, we still have a long way to go.

So, what do you think? How do you describe hearing loss to your friends, family or people you aren’t that close with? Does it matter?

“The idea behind “hearing impaired” is that we are lesser human beings and must be fixed to function.

Those who suffer (dare I use “suffer”?) from mild to moderate hearing loss do not necessarily identify with the term deaf—a word that is historically loaded and also carries a distinction between capitalized and lowercase “d”. Uppercase “Deaf” reflects a community and a culture of identity, and carries pride similar to that of ethnic and religious groups. Lowercase “deaf” can reflect only severe to profound hearing loss, or hearing loss on the whole, depending who you ask.” – Christina The Name I Call Myself 

Join the discussion about this topic in the comments section, or on the Hearing Like Me forum!

Continue reading “The Minefield of Hearing-Related Terminology”

Finding out our baby was Deaf

We were still getting used to the fact we had a mini human who was awake most of the night when we found out that Harry was deaf. He was just 7 weeks old when he failed the Newborn Hearing Screening.

After a series of tests and a very intensive ABR he was confirmed as profoundly deaf with no threshold of hearing. The emotions hit us like a steam train and immediately we felt worried and scared for what the future would hold for our perfect baby boy. I remember that day so clearly; when my partner Scott and I held each other close and cried ourselves to sleep. We almost had to mourn what our idea of a perfect child was, and come around to the fact that our experience as first time parents was going to be a little different than what we had expected.

We spent a good few days feeling extremely upset and worried for our little chap. Our baby was the only deaf person we had ever met. It was a completely new thing to learn about. I started to panic when I left him alone to sleep, as I thought he would wake up and be scared because he couldn’t hear us. It took me a while to realize that actually Harry had never known any different, and he shouldn’t be scared because to him the world had always been silent.

It was as quick as the day after Harry’s diagnosis when we had a phone call from our local Teacher of the Deaf. The amount of information being fed to us was quite overwhelming, but comforting knowing a support system was already in place. She came over soon after to introduce herself, and we immediately felt confident that our son wasn’t going to be forgotten about or left behind. She explained that she would help us with his development from Day 1 until he finished his education, which filled us with hope and a lot more confidence than we had initially had.

Continue reading “Finding out our baby was Deaf”

Deafie Blogger joins Open Ears

Hi there, let me introduce myself. My name is Ellen, but my friends call me Ellie. I live in Norfolk, UK. Some of you may know me as Deafie Blogger. I’m 18 years old, and I’ve been profoundly deaf since birth. I wear two digital Phonak hearing aids, which allow me to communicate through lip-reading and speech. I don’t use British Sign Language, although I’d love to learn one day. I’m a typical teenager, and I love being sociable, spending time with family and friends, travelling and swimming.

Of course, I’m proud to be deaf, because I wouldn’t have achieved what I have, if I was hearing. I would just be ordinary. I am passionate about deaf awareness, no doubt about it. Over the past year I’ve really gotten interested in blogging and deaf culture, and I’m hoping that I can enthuse and encourage other deaf teenagers to prove that they can achieve anything they dream of. I love writing about everyday situations in the life of a deaf person, with the aim of making others feel as if they’re not alone.

Continue reading “Deafie Blogger joins Open Ears”

19 Percent

19.1 percent.

That’s the number of people with disabilities working in the US, compared to 68.2 percent without disabilities, according to United States Department of Labor’s September 2015 Disability Employment Statistics.

The Americans with Disabilities Act (ADA) has laws that make discrimination on the basis of disability illegal, but my high school experience showed me the slippery ways people in power can bypass these laws.

In my first post-graduate job, a makeup salesperson at a major US department store, I received diversity training, which included many topics: language inclusivity; recognizing racial bias; respect of different religions. But what struck me was the topic of disability.

When I first entered the workforce, my parents encouraged me to hide my disability because I passed for able-bodied better than most people in my position. Any discrimination, they believed, would be brought by my openness, and they suspected it would be better for me to be quiet. Typically, I would have rejected this advice, telling my parents I would not be shackled by chains of ableism created by ignorant people, however, I was nervous about my post-collegiate future and felt adrift in the “real world” after almost 20 years of academia. I hated living at home and I wanted to earn money, but I was not sure if moving out and making a living would be possible if I was open about my hearing loss. Wanting to err on the side of caution, I nervously chose to go into hiding on my first day of work.

Continue reading “19 Percent”

Cool Halloween Hearing Aids Prove that Technology Isn’t Scary

Hearing aids can be scary to someone who doesn’t know how they work. So with Halloween just around the corner, we think it’s the perfect opportunity to show kids and their friends that hearing aids are cool!

??? #captainamerica #superhero #halloween #marvel #hearinglosswontstopme #nikon #hearingaids #phonak #hearingloss #hearinglossawareness @marvel

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Continue reading “Cool Halloween Hearing Aids Prove that Technology Isn’t Scary”

How I Made My Dog Afraid of Thunderstorms

For the first 12 years of my life, I slept peacefully through the majority of thunderstorms. If I ever awoke, it was during a strike so violent everybody in the house was awake, and huddled in my mother’s bed.

With half an eardrum in one ear and no eardrum in the other, the idea of a thunderstorm being frightening seemed silly. Why would pretty flashing lights with next to no sound be scary? As long as there was no thunder, storms seemed like a ridiculous thing to fear.

Summer 2005, however, would change this idea for the rest of my life.

Almost one year after my left eardrum was repaired and half my hearing was restored, the horror of strange sounds hit me.

Continue reading “How I Made My Dog Afraid of Thunderstorms”

Hear Haiti: Getting More Than You Give

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Carina Rodriquez is the Clinical Manager of Latin America for Advanced Bionics. She is originally from Uruguay, and moved to southern California two years ago.

Day 7:

I joined this Hear the World mission as part of the diagnostic audiology team. Although the daily profession is second-nature to us back in the States, here in Haiti we are learning the true significance of our role. The medical professional aspect of hearing impairment and thinking about it as a “job” seems less important here in Haiti, and it has become an expression of love towards the patients–responding to their needs from our hearts.

Continue reading “Hear Haiti: Getting More Than You Give”

Hear Haiti: Giving the gift of sound

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Nerissa Davies is an audiologist with Connect Hearing in Courtenay, BC, Canada. She has seven years experience in pediatric audiology is passionate about helping people of all ages hear and communicate with their loved ones.

Day 3:
Today was an amazing and wonderful day in Haiti. We got up early and enjoyed a delicious breakfast prepared by the stellar staff at New Life Children’s house, then after a pep talk from Cathy we drove out to the Deaf Academy in Leveque.

Honestly, I have never been so warmly welcomed anywhere in my life. The children swarmed out to meet us, with joyful smiles and hugs aplenty. Truly, I have never known children so eager to laugh, so generous with affection and so grateful for help. In particular, Mike (our on-site hearing aid technician) was a big hit with the young boys, who smothered him with hugs. Every time I looked at him, he had one boy in each arm, one boy clinging to each leg, and sometimes even a fifth one on his back! It was easy to see how pleased they were to have us and how hopeful they were that we could help them.

And so we set about doing just that.

Continue reading “Hear Haiti: Giving the gift of sound”