Finding out our baby was Deaf

We were still getting used to the fact we had a mini human who was awake most of the night when we found out that Harry was deaf. He was just 7 weeks old when he failed the Newborn Hearing Screening.

After a series of tests and a very intensive ABR he was confirmed as profoundly deaf with no threshold of hearing. The emotions hit us like a steam train and immediately we felt worried and scared for what the future would hold for our perfect baby boy. I remember that day so clearly; when my partner Scott and I held each other close and cried ourselves to sleep. We almost had to mourn what our idea of a perfect child was, and come around to the fact that our experience as first time parents was going to be a little different than what we had expected.

We spent a good few days feeling extremely upset and worried for our little chap. Our baby was the only deaf person we had ever met. It was a completely new thing to learn about. I started to panic when I left him alone to sleep, as I thought he would wake up and be scared because he couldn’t hear us. It took me a while to realize that actually Harry had never known any different, and he shouldn’t be scared because to him the world had always been silent.

It was as quick as the day after Harry’s diagnosis when we had a phone call from our local Teacher of the Deaf. The amount of information being fed to us was quite overwhelming, but comforting knowing a support system was already in place. She came over soon after to introduce herself, and we immediately felt confident that our son wasn’t going to be forgotten about or left behind. She explained that she would help us with his development from Day 1 until he finished his education, which filled us with hope and a lot more confidence than we had initially had.

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Deafie Blogger joins Open Ears

Hi there, let me introduce myself. My name is Ellen, but my friends call me Ellie. I live in Norfolk, UK. Some of you may know me as Deafie Blogger. I’m 18 years old, and I’ve been profoundly deaf since birth. I wear two digital Phonak hearing aids, which allow me to communicate through lip-reading and speech. I don’t use British Sign Language, although I’d love to learn one day. I’m a typical teenager, and I love being sociable, spending time with family and friends, travelling and swimming.

Of course, I’m proud to be deaf, because I wouldn’t have achieved what I have, if I was hearing. I would just be ordinary. I am passionate about deaf awareness, no doubt about it. Over the past year I’ve really gotten interested in blogging and deaf culture, and I’m hoping that I can enthuse and encourage other deaf teenagers to prove that they can achieve anything they dream of. I love writing about everyday situations in the life of a deaf person, with the aim of making others feel as if they’re not alone.

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