Finding out our baby was Deaf

We were still getting used to the fact we had a mini human who was awake most of the night when we found out that Harry was deaf. He was just 7 weeks old when he failed the Newborn Hearing Screening.

After a series of tests and a very intensive ABR he was confirmed as profoundly deaf with no threshold of hearing. The emotions hit us like a steam train and immediately we felt worried and scared for what the future would hold for our perfect baby boy. I remember that day so clearly; when my partner Scott and I held each other close and cried ourselves to sleep. We almost had to mourn what our idea of a perfect child was, and come around to the fact that our experience as first time parents was going to be a little different than what we had expected.

We spent a good few days feeling extremely upset and worried for our little chap. Our baby was the only deaf person we had ever met. It was a completely new thing to learn about. I started to panic when I left him alone to sleep, as I thought he would wake up and be scared because he couldn’t hear us. It took me a while to realize that actually Harry had never known any different, and he shouldn’t be scared because to him the world had always been silent.

It was as quick as the day after Harry’s diagnosis when we had a phone call from our local Teacher of the Deaf. The amount of information being fed to us was quite overwhelming, but comforting knowing a support system was already in place. She came over soon after to introduce herself, and we immediately felt confident that our son wasn’t going to be forgotten about or left behind. She explained that she would help us with his development from Day 1 until he finished his education, which filled us with hope and a lot more confidence than we had initially had.

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Hear Armenia: Ensuring little ears can hear

Open Ears is following a group of Sonova team members as they head to Armenia with the Hear The World Foundation. Elena Torresani leads the department of the Hear the World Foundation. She is passionate about her job, is creative and enthusiastic. Outside of work, she enjoys cooking, travelling, doing yoga and spending time with her loved ones.

Every year, about 665,000 babies around the world are born with significant hearing loss. This is a statistic that, as a foundation, empowers us to help make a difference in these children’s lives.

Since 2010, The Hear the World Foundation has been supporting the Arabkir Hospital in Yerevan to develop a newborn hearing screening program. Since then, the program has expanded to five additional provinces of Armenia. Now, all infants born at these locations receive a newborn hearing screenings 48 hours after birth!

We saw firsthand the success of this program during our visit to the Institute of Perinatology on Thursday, where we watched baby Haik have an Otoacoustic emissions (OAE) test, which can detect blockage in the outer ear canal, as well as the presence of middle ear fluid and damage to the outer hair cells in the cochlea.

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