19 Percent

19.1 percent.

That’s the number of people with disabilities working in the US, compared to 68.2 percent without disabilities, according to United States Department of Labor’s September 2015 Disability Employment Statistics.

The Americans with Disabilities Act (ADA) has laws that make discrimination on the basis of disability illegal, but my high school experience showed me the slippery ways people in power can bypass these laws.

In my first post-graduate job, a makeup salesperson at a major US department store, I received diversity training, which included many topics: language inclusivity; recognizing racial bias; respect of different religions. But what struck me was the topic of disability.

When I first entered the workforce, my parents encouraged me to hide my disability because I passed for able-bodied better than most people in my position. Any discrimination, they believed, would be brought by my openness, and they suspected it would be better for me to be quiet. Typically, I would have rejected this advice, telling my parents I would not be shackled by chains of ableism created by ignorant people, however, I was nervous about my post-collegiate future and felt adrift in the “real world” after almost 20 years of academia. I hated living at home and I wanted to earn money, but I was not sure if moving out and making a living would be possible if I was open about my hearing loss. Wanting to err on the side of caution, I nervously chose to go into hiding on my first day of work.

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Training and Straining

A few weeks ago I wrote about how I take my ears on and off all the time in my day-to-day life, and Beverly commented something that hit home:

The key to hearing better longer is to keep your auditory nerves and brain active and NOT let them atrophy. Through the use of hearing aids you’ll enjoy a better quality of hearing longer. Put them in and forget about them.

It reminded me of my father’s first time with glasses. Something like twenty years ago, he had to begin to wear glasses; at the normal age when eyes become less flexible and arms need to be longer and longer because you can’t adjust your eyesight the way you did when you were younger.

His first reaction was “Oh wow, it’s better” and then went on to “Actually no, wait now, we have to talk it through again”. Ring any bells?

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But Your Hearing is Perfect

We’ve all talked on this blog about how different the perception is between viewing aids (better known as glasses) and hearing aids (better known as “my ears” by people wearing them, and as “prosthetics” by people seeing them). A few months ago we were on holiday at the beach — don’t let me get me started on Corsica, one of the finest places in the world. We spent two weeks there; every day we’d go to the beach and dive among schools of fish.

Blue Corsica

Without my hearing aids, discussions on the beach were some approximate gibberish mixed with outcries from happy children playing around, the buzz from some distant sea scooters, the splashes, the regular pounding of waves. In fact I heard less than half the conversations. But you know how beach conversations go: most of the time it’s more chit-chat than life-changing decisions, so I didn’t really mind and decided to let go. I love reading books on the beach anyway.

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Your Audiologist — A Life-Long Relationship

It was another “normal day” at the office. My schedule was full of hearing evaluations, hearing aid fittings, and follow-up appointments. No boring routine, as each client was unique in their history and needs, as well as their expectations. As any doctor does, I had developed a mental check list I would follow when meeting a new patient. Medical history, listening needs, diagnostic testing, explanation of evaluation results and counseling. The process had never failed me.

I met Jane in the waiting room, brought her back to the testing area, and introduced myself. After completing the diagnostic testing it was time to start the counseling portion. Jane was not unlike other individuals I had worked with, however she was unique and to this day has made a lasting impression on my professional career.

Audiologist for life

Jane was young, in her early thirties at the time of her evaluation, and had experienced a rapid decrease in hearing in her right ear. Over a very short period of time, Jane had lost approximately 75% of her hearing in that ear, while her left ear remained unaffected. She worked in a multi-physician office that required her to perform quickly and efficiently, two qualities which were starting to be affected by her hearing loss. She described anxiety, stress, exhaustion, and an overall feeling of desperation for any intervention that may help her “get her hearing back”.

As her audiologist I could see the physical evidence that her hearing evaluation revealed. However, I knew that if I simply started to read the results back to her, I would only be adding to the sense of helplessness she was describing. So I did the next best think I could think of. I pulled my chair up next to Jane and her husband, left her results on the table, and told her that she already knew what the results were. Her hearing was indeed measurably worse in her right ear in comparison to her left ear. She had been working overtime trying to compensate for the difference. I told her that she had every reason to be upset, to feel stress and anxiety while trying to perform her job. Most importantly, I told her that she was exhausted at the end of the day because she was doing the job of two ears with one. She was working to compensate and function as if she still had normal hearing in both ears. Her brain was literally exhausted. Everything she described, every function and emotion, was valid. She was exhausted.

It was only a matter of seconds before she started to cry in the middle of the office. For a hearing healthcare professional, crying is not out of the norm to experience on a daily basis. Jane’s crying surprised me, however, and I think it surprised her husband as well. When I was finally able to ask her if she was okay, she looked at me and simply said, “thank you”. I asked her why she was thanking me, as I must admit you do not always receive a “thank you” when you explain results to clients. Her explanation was easy: I had been the only person who had taken the time to validate what she was experiencing on a daily basis.

The rest of the appointment was filled with discussions of Jane’s unique hearing loss, her work environment, the amplification options available, and the expectations of what may or may not be possible. Regardless of the outcome of Jane’s appointment that day, she left my office a vastly different woman than when she first arrived. She was not the only person who had been transformed in the 90 minutes that had elapsed, however. She also made a lasting impression on me. To this day I remember Jane and I can feel the emotions of that appointment rush back over me. I only hope that in the 5, 10, or 20 years even, Jane remembers the same thing. These relationships are the ones that last forever.

Relationship? Is that the right word to describe the interaction between a patient/client and a doctor? If you’re talking about your general healthcare provider perhaps it is, but your dentist? Maybe not. Your audiologist? Absolutely! The definition of relationship says it all: “The way in which two or more people or things are connected”. A hearing loss impacts the rest of your life, as does your decision to (or not to) wear hearing aids. The routine testing, maintenance of hearing aids, fine tuning and programming, repairs,etc., these are all actions taken between you and your audiologist. When something is not functioning appropriately or broken, you depend on your audiologist to know the answer and get you communicating again! Your audiologist, when you find one that you feel comfortable and happy with, will always be a part of your life.

It is our human nature that causes us to “judge” someone when we meet them — do we like their personality, are we “on the same page”, will we work well together? These are all questions that you should ask yourself when you meet your audiologist, because it is important to remember that if you are starting this relationship out on the wrong foot, then it cannot grow and evolve like it needs to. Not only do you make an impact on the audiologist, but we can only hope to make an impact on your life — your communication. We do all that we can to provide you with the tools you need to have continued success and a life full of unlimited communication and interaction with the world around you.