My Strategies for Coping With Single-Sided Deafness

When I started losing my hearing at the age of thirty, I was really embarrassed about it and I didn’t want people to know I was going deaf. It felt like a failing and I took the news that I needed a hearing aid pretty hard.

I did not want to accept the diagnosis of otosclerosis. I’d read that it was hereditary and painless and I was having a lot of pain and didn’t know anyone in my family who’d had this condition (although my Grandmother who died when I was five did have deafness of some sort but my Dad and Aunt don’t know the cause). Most of all, I just didn’t want to accept that I was going deaf.

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FDA Social Media Guidelines: How We Comply at Phonak

fda-social-media-guidance

Just last month the FDA released their latest Internet and Social Media Guidance for Pharma and Med-tech companies. If you haven’t read it yet, have a look here.

With the rise and use of social media across all industries, Med-Tech was bound to adopt social media at some point, especially given the prevalence of customer usage and relatively cheap way of reaching customers and/or offering customer service via electronic means. The introduction of this document points out that its purpose is to illustrate the agency’s current thinking regarding communication of benefits and risks through social and online media. The hearing aid industry generally does not fall under the exact guidelines as indicated in the latest draft, however the overall suggestions and illustration of what the FDA lays out is obviously food for thought for any health care organization marketing to customers online.

In the U.S. the FDA generally recognizes two types of labeling; that which is required labeling (think approval labeling) and the second which is promotional labeling (subsequent marketing materials/labeling). They recommend considering the following when promoting products on social media and online mediums:

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How I “Get” People to Talk to me so I Can Understand Them

A complaint I’ve heard a few times lately in the hearing loss support groups I hang out in is that “full-hearing” people resist making the effort to talk to us in such a way that we can understand them. Or they do sometimes, but then forget. I feel a lot of frustration around this for some people, sometimes translated into judgements about the other “not caring” or “not paying attention” or “being offended”.

Misunderstanding

This reminds me a little, in a “through the looking-glass” way, of how we “less-hearing” people are sometimes accused of “not paying attention”, “not making an effort”, or “being distracted”.

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Social media and the hearing aid industry

It’s been a year since I joined Phonak as Social Media Manager/Strategist. Previously I worked for a young, cool, and fun watch brand that was the perfect fit for social media. When I decided to change companies people asked me: “Why on earth would you leave your current job to work for the hearing aid industry?” My answer could be summed up in one word: engagement. The kind of engagement Brian Solis has so often written about.

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To me, it was obvious that the hard-of-hearing community would bring a deeper level of engagement than the “Wow, cool & nice!” comments that appear whenever a “cool” brand shares something on Facebook, Instagram or Pinterest. This community would be willing to bond deeper through social channels with the brands manufacturing the devices that truly impact their daily life.

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