Category: Community Blog

Health and Hearing: A Broader View (Part I)

All I wanted to know, after losing 100 percent of my hearing in the left ear in 1978, and much of the hearing in my right ear in 1980, was… why? Why did this happen to me in my late 20s while I was supposedly in perfect health? Why did it happen at the exact moment in my musical trajectory when I had reached a peak – winning acclaim, earning hefty dollars and with a bright future assured.

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Me, before my hearing loss

Why?

My plea was certainly to try and understand what had happened to me from a health standpoint after so quick and dramatic a loss. But more importantly, it was to see what I might be able to do about it. Other than telling me what happened, the doctors couldn’t tell me why – or what to do about it.

The polytomography showed no tumors. Steroids were administered to address potential immune issues, but there were no answers coming, and no drugs or surgery to help me forward.

They called it bilateral sensorineural hearing loss. A perfect term if you’re a hearing professional. A garbage term if you were me.

What could I do about sensorineural hearing loss?

Nothing, they told me. This was for life – including the accompanying tinnitus in both ears. And there would be no turning back. Only a hearing aid stood between me and silence.

I recognize for many among the “hearing lost,” that information would have been enough to know, and a hearing aid would have provided the necessary accommodation. Carry on. ‘Nuff said.

But it never was and never has been enough for me, in part because of my personality, and also because I had the added impetus – or more accurately, desperation –  to get back to music in some way, shape or form.

That was 34 years ago. Continue reading “Health and Hearing: A Broader View (Part I)”

19 Percent

19.1 percent.

That’s the number of people with disabilities working in the US, compared to 68.2 percent without disabilities, according to United States Department of Labor’s September 2015 Disability Employment Statistics.

The Americans with Disabilities Act (ADA) has laws that make discrimination on the basis of disability illegal, but my high school experience showed me the slippery ways people in power can bypass these laws.

In my first post-graduate job, a makeup salesperson at a major US department store, I received diversity training, which included many topics: language inclusivity; recognizing racial bias; respect of different religions. But what struck me was the topic of disability.

When I first entered the workforce, my parents encouraged me to hide my disability because I passed for able-bodied better than most people in my position. Any discrimination, they believed, would be brought by my openness, and they suspected it would be better for me to be quiet. Typically, I would have rejected this advice, telling my parents I would not be shackled by chains of ableism created by ignorant people, however, I was nervous about my post-collegiate future and felt adrift in the “real world” after almost 20 years of academia. I hated living at home and I wanted to earn money, but I was not sure if moving out and making a living would be possible if I was open about my hearing loss. Wanting to err on the side of caution, I nervously chose to go into hiding on my first day of work.

Continue reading “19 Percent”

Hear Armenia: A diary of our visit

Open Ears is following a group of Sonova team members as they head to Armenia with the Hear The World Foundation. Nazan Yakar and Christiane Schubert, who volunteered for the project, are both Audiologists with Phonak Germany.  This is their account of the Hear Armenia 2015 project visit. 

Our journey to Armenia began in May 2015, when Nazan and I first talked with the Hear the World Foundation staff about the option to volunteer for a project. Although there was no clear opportunity at the time, just a few weeks later we were lucky enough to be presented with a chance to support the Hear the World project in Armenia. We decided very quickly to accept the offer, as we’re excited about the opportunities to gain practical experiences in the pediatric field, aside from our daily business.

Slowly, we started to learn more about our tasks and about the Hear the World program in Armenia. We had several calls with former volunteers and staff who visited the Arabkir Hospital, where we would work. Together we brainstormed we would support the hospital best this year.

Before we left, Nazan and I collected several items from our pediatric products to bring along, such as Leo plush toys and books, Junior kit clips, cleaning tools and battery testers. Hear the World Foundation, as part of their yearly grant, also provided a variety of hearing instruments and Roger devices.

In a few months, we were ready to split the supplies, pack up our bags and head to Armenia!

Continue reading “Hear Armenia: A diary of our visit”

The Perils of Hearing Less in the Classroom

In another lifetime I was a middle-school teacher. It only lasted for two years, but at that time I thought it might be my career.

I didn’t wear hearing aids then. Of the many difficulties I faced teaching classes of teenagers, I think some of them did have their root in my hearing loss.

First of all, I couldn’t understand soft-spoken students, and often had to make them repeat themselves. Uncomfortable for me, and also for them, especially if they were shy. The accompanying snickers from the rest of the class were certainly not a positive thing for the class atmosphere or my relationship with them.

I also had trouble when students made low-voiced comments or “talked back” in such a way that everybody could hear but me. It does make it difficult to ensure classroom rules are followed when so much can go on under your threshold of perception.

At the time, I didn’t realise how “bad” my hearing was (I knew I had some hearing loss). I didn’t realise that my colleagues heard that much more, and therefore had more information at hand to help them manage the class. Not hearing well clearly was not my only shortcoming in teaching teenagers, but I probably blamed myself more than I should have for the difficulties rooted in “not hearing things”.

Continue reading “The Perils of Hearing Less in the Classroom”

Hear Armenia: Ensuring little ears can hear

Open Ears is following a group of Sonova team members as they head to Armenia with the Hear The World Foundation. Elena Torresani leads the department of the Hear the World Foundation. She is passionate about her job, is creative and enthusiastic. Outside of work, she enjoys cooking, travelling, doing yoga and spending time with her loved ones.

Every year, about 665,000 babies around the world are born with significant hearing loss. This is a statistic that, as a foundation, empowers us to help make a difference in these children’s lives.

Since 2010, The Hear the World Foundation has been supporting the Arabkir Hospital in Yerevan to develop a newborn hearing screening program. Since then, the program has expanded to five additional provinces of Armenia. Now, all infants born at these locations receive a newborn hearing screenings 48 hours after birth!

We saw firsthand the success of this program during our visit to the Institute of Perinatology on Thursday, where we watched baby Haik have an Otoacoustic emissions (OAE) test, which can detect blockage in the outer ear canal, as well as the presence of middle ear fluid and damage to the outer hair cells in the cochlea.

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Continue reading “Hear Armenia: Ensuring little ears can hear”

Hear Armenia: Gifting the sound of music

After a successful trip to Haiti to provide support to children who have hearing loss, Hear The World Foundation has head to Armenia. Open Ears is following the group of Sonova team members on their journey. As Head of the Hear the World initiative, Elena Torresani leads the department of the Hear the World Foundation. She is passionate about her job and is creative and enthusiastic. Outside of work, she enjoys cooking, travelling, yoga and spending time with her loved ones.

We’ve spent most of the time here in Armenia fitting children with new hearing aids, adjusting their hearing aids, preforming Visual Reinforcement Audiometry tests and doing newborn hearing screenings. It has been amazing watching the children react to new sounds and see how well they’ve adjusted to their hearing aids since the last time we were here.

One boy, named Daniel, was first fit for hearing aids when he was just eight months old. It took him one month until he reacted to his name, and now he is alert, attentive, clever and asking a lot of questions!

Another little girl Ruzana, was first had an Auditory Brainstem Response test, which was donated by Hear the World for use by the Arabkir Hospital, when she was a baby. Since her diagnosis of severe to profound hearing loss, she has received hearing aids, and now at four-and-a-half years old, she speaks well, and is doing great at school, with help from her FM system.


Aside from helping these children hear the world, we’ve also been able to provide them with a special gift, thanks to the support of Phonak team members back in Switzerland and Germany!

Continue reading “Hear Armenia: Gifting the sound of music”

Cool Halloween Hearing Aids Prove that Technology Isn’t Scary

Hearing aids can be scary to someone who doesn’t know how they work. So with Halloween just around the corner, we think it’s the perfect opportunity to show kids and their friends that hearing aids are cool!

??? #captainamerica #superhero #halloween #marvel #hearinglosswontstopme #nikon #hearingaids #phonak #hearingloss #hearinglossawareness @marvel

A post shared by #hearinglosswontstopme??☔️☀️?? (@k.piesch) on

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How I Made My Dog Afraid of Thunderstorms

For the first 12 years of my life, I slept peacefully through the majority of thunderstorms. If I ever awoke, it was during a strike so violent everybody in the house was awake, and huddled in my mother’s bed.

With half an eardrum in one ear and no eardrum in the other, the idea of a thunderstorm being frightening seemed silly. Why would pretty flashing lights with next to no sound be scary? As long as there was no thunder, storms seemed like a ridiculous thing to fear.

Summer 2005, however, would change this idea for the rest of my life.

Almost one year after my left eardrum was repaired and half my hearing was restored, the horror of strange sounds hit me.

Continue reading “How I Made My Dog Afraid of Thunderstorms”

Hear Armenia: Helping an earthquake ravaged country hear

After a successful trip to Haiti to provide support to children who have hearing loss, Hear The World Foundation is heading to Armenia. Open Ears will be following the group of Sonova team members on their journey. As Head of the Hear the World initiative, Elena Torresani leads the department of the Hear the World Foundation. She is passionate about her job and is creative and enthusiastic. Outside of work, she enjoys cooking, travelling, yoga and spending time with her loved ones.

Hear Armenia

Armenia is a country with a great need for action and support of its health industry.

In December 1988, two earthquakes – measuring at 6.9 and 5.8 in magnitude – hit Armenia, killing up to 50,000 people and destroying nearly half a million buildings. Weakened by the earthquake, and the demise of the Soviet Union, Armenia’s economy broke down. The country began gaining some momentum in the late ‘90s when market reform was introduced, but the industrial sector continued to suffer. Ten years later, the 2008 financial crisis put the country again in jeopardy, destroying the positive developments made after the earthquakes. Today, 20 percent of Armenians live on less than $2 a day. Their access to healthcare is a question of money, as approximately 60 percent of healthcare costs are paid for by the patient out-of-pocket. The state spends less than 2 percent of gross domestic product on healthcare for the population, and hospitals often don’t have the necessary equipment or well-trained medical personnel.

Continue reading “Hear Armenia: Helping an earthquake ravaged country hear”

Hear Haiti: Haiti, the Unbelievable

Open Ears is following a group of Sonova team members as they head to Haiti with the Hear The World Foundation. Jenn Brinn is a digital marketer who works at Sonova e-Hearing Care in Nashville, Tennessee. She is passionate about technology, travel, coffee, documentaries, and her family.

Day 8

Over the years, The Hear the World Foundation has been sending volunteers on dozens of service trips with the mission of providing better access to hearing healthcare to those in need around the globe. Historically, these volunteers have been Sonova employees with a clinical audiology background; after all, the majority of the work on these trips is to fit and recheck hearing aids. Since starting work at Sonova a year-and-a-half ago, I would get the emails asking for volunteers for this or that service trip, but none of the qualification criteria matched my skill set.

In May, I finally got the email I’d been waiting for…the trip to Haiti in October of 2015 needed a communications volunteer. Seeing as my background and interests are in digital marketing and communications, this opportunity was a perfect fit. I applied, and in early July was notified that I was selected to be the first volunteer with a dedicated role of being the trip historian/documentarian. Since I am not an audiologist, I immediately began brainstorming how I could leverage my hobbies (and day job)–which consists of photography, videography, social media, and content creation–to best capture the spirit of the people we were setting out to serve. The answer, I would come to find out, was about to reveal itself to me in a way I wouldn’t have believed if I didn’t experience it for myself.

LuggageIt began when our plane touched down in Port Au Price around 3 p.m. Sunday. The airport was small and crowded. The baggage claim carousel was chaos–people pulling bags off as quickly as they were released, elbowing one another out of the way, knocking into each other with luggage carts. Once the area cleared, my bag was nowhere to be found. After searching and waiting for over an hour, I surrendered to the fact that my luggage was either taken by mistake or stolen. Not wanting to hold up the team any longer, we loaded up the bus and headed to New Life Children’s Home where we would be staying for the week. I thought, surely in a few hours someone will call saying they had taken my bag by mistake and it would be returned to me. But by 9 p.m., my phone hadn’t rung. It was time to start asking my travel mates to borrow pajamas, a toothbrush, and something to sleep in. In the poorest country in the Americas, the only items I had to my name were the clothes on my back and my camera and computer, which I traveled with in my carry-on backpack. Talk about being out of your comfort zone!

Continue reading “Hear Haiti: Haiti, the Unbelievable”